There is hope never settle for “there is nothing we can do”

Hello Thursday! So this is Ashley’s 8th day in the ICU (dont count the surgery night) and she WAS doing much better now that we’ve taken charge for pain control management. Two nights ago we walked around the ICU about four times and then walked to her old room. To put this in perspective it’s probably about a 1/4 of a mile And this was on 20 mg of ketamine and 8 mg of Dilaudid. The docs cannot believe that she can function on this amount of drugs Ha ha they don’t know this girl very well then.
So for the last few days have been a waiting game for the allusive bowels to move. This is causing Ashley to be Distended in the stomach. I never thought I would be glad to say that I think you passed some gas “thank god every thing is working!!” Unfortunately as things are moving through it is causing her significant pain but with time it should get better. Her Urine output has slowed a lot and her kidneys were not flashing out the toxins so the #s were way off. So the docs wanted to blow holes in her back straight to the kidneys to drain them – not fun! The thought was her Ureters stents were blocked or still a mass in that area compressing on them. But I did not think this was the case maybe scar tissue from surgery compressing or the stents or they needed to be changed out. Don’t ever jump the gun this is what Ashley has taught me. Good news is the urologist came in to talk to us about this and her urine output increased kidneys must of been like “hello! not going to happen!! So we figured the kidneys were damaged from the chemotherapy slightly which happens a lot about 7-10 days post-chemo or so and now they are in recovery stage.
During this whole process Her heart rate and blood pressures has been elevated but we were not sure why. So I’m pretty sure we figured out the problem today because this morning she had a temperature of about 101. Not good this means she had an infection So we did blood cultures. Came back positive for an infection. One step forward one step back -damnit! So since she has an infection in her bloodstream we had to cut out her Mediport and pull her pic line to rule those out because it could have been the source of the problem and hold bacteria. Anytime you have an open access to the bloodstream there is a risk. So now they had to put a central line in her neck this will give them three access points like she had before total.

Ashley was not happy poor girl had been through so much. You bet I asked if this was staff infection and jumped down their throats. They assured me that the bacterial infection was not consistent with staff infection though so it could have been any thing a lot of germs in the ICU. The second thing it could be but hope not is something is leaking from the surgery pluming diversions she had done. We are waiting in a holding pattern for the results from the CT scan…

So basically Ashley had many surgeries done today amongst everything else I wrote . She had her mediport cut out, PIC line cut out, x-ray, ct scan, Aline cut in and central line in neck and everything else. Yes she is very heartbroken that we are taken steps back and she is totally out of it from her drugs she is on. It’s hard for her. Very busy day!!

Day 7 in ICU Wednesday ‘s post….

Unfortunately Ash couldn’t get to sleep last night until the nurse gave her some sleep meds and she had been out since 5am and all day long today so her schedule is off. But we are trying to be very positive and still fighting like you would not believe. Ashley is getting sick of all this but I told her to stay strong there is light at the end of the tunnel. Better days are coming just another bump in the road well it Feels like rumble strips very big rumble strips.

So just wanted to get it out there to let everybody know that there is hope, never to give up, always dig for information and ask questions. Ashley’s surgeon is one of the best surgeons out there he has pioneered the procedure named after himself and has taught a few other surgeons how to perform this procedure. So I can say without 100% doubt that she had the best surgeon for this surgery. With that being said if Someone tells you there is no hope and there” nothing they can do sorry” they are not fighting for you hard enough just keep keepen on.

Song for my wife

So we need to get the word out that most oncology Dr. Are like the weather man if they are wrong they still get paid by pushing the chemo. It’s all about the money that’s just life . Me and Ashley truly believe that you can help your self along the way with homeopathic Therapies. But due to the pharmaceutical companies and the FDA a lot of these natural remedies are not embraced due to the money. I’m not saying that these drugs will cure you I’m just saying they may help along the way and that we have used many and feel they have helped Ashley substantially through her battle with cancer. You can follow the money the FDA makes the Pharmaceutical companies go through billions of dollars worth of hoops to bring a drug to market safely they say. But when was the last time you watched one of those commercials that said if you have taken this drug contact us the Mike Slocum
Law office And you may be entitled to money back due to medical damages caused by a drug where was the FDA at the bank cashing big pharmacies check. haha . Do we need government involved I think not but you are Entitled to your own opinion though this is America after all. But on the other hand drug companies are not going to put out drugs on the market to harm you. Not gonna happen just as I’m not going to do crappy carpentry work because I won’t get any more work or the clients won’t trust me any more same goes for pharmaceutical companies. They need the American people to trust them and buy safe drugs. Watch this video Ron Paul put out it’s very good and will maybe make you think. It’s sad to think we would keep something good from humanity off the market because of greed but this is the world we live in EVERY THING Revolves around money just the truth. “It’s all about the Benjamin’s”

http://www.infowars.com/ron-paul-fda-and-big-pharma-are-in-bed-together/

On a better note I feel like there’s something we can do about cancer maybe not a form of a cure but there are things that we can do to help those that need it the most get the WORD OUT.
How come it is that Ashley is going through cancer this whole time and I have done my homework as I have said time and time again we been told surgery was not an option. Still did not stop looking up surgery options but still unable to find a world renowned surgeon right under our nose. People need to talk speak up and not Worry about giving somebody wrong information just give it to them and let them decipher it on their own so they can make the Decision. So many times people today are scared of telling somebody something wrong because of backlash that they don’t want to get involved. With that being said I appreciate everybody that has thrown out things they have read that may or may not be of some use. Just have to ask yourself is it all worth just one more day for me and Ashley every second counts and surgery was a no-brainer when we were given the option. Sure it was hard to pull the trigger at first but you have to weigh the benefits against the negatives. If everything goes okay with Ashley and she is doing well soon I would like to try to get her on a TV talk show so she can tell her story and maybe we can even get her surgeon to tag along. Just think of how many people are out there right now that thinks there’s no option for them and surgery could be a possibly. This could extend their life months if not years or decades who knows what the possibilities you just need to find out for yourself. In my opinion Ashleys surgeon is the best and most aggressive surgeon that anybody will find and he is truly a hero in my book for stepping outside the box. Maybe we all could learn a thing or two from this man. I know there are other surgeons out there and if you are put in this situation then you have to do your own extensive research. So I need to get Ashley on Ellen or the View or any other talk show to tell her story.

This is basically the surgery Ashley went through. Warning May contain graphic materials for children under the age of 18