PanCan has become a real pain in my a$$ – literally!!

I woke up in pain today.  Damn spleen pain.  Why why why why why???? I wanted to know.  I thought I took it easy yesterday.  I found out that the laundry and light cleaning I did was “too much”.  I am not suppose to BEND AT ALL.  Ugh!  No bending, no cleaning, no twist, turn, exercising.  Dangit!!!   Thankfully after some ibuprofen, heat and 20mg of oxcydone, I had some relief.

I let 4 hours pass so the oxy would leave my system so I could drive.  I felt good now and it’s 11am and I headed out because I needed to go down to Fredericksburg, VA. The traffic was good at this hour getting out of the city (DC) but once I started down 95SB it was like rush hour.  The Washington, DC area has the worst traffic in the country.  I am not saying this because I know it sucks but I even watched it on the news not long ago, yes DC has the worst traffic out of anywhere.  It’s a nightmare.  This is why I moved from Virginia up because I hated driving in it to work as did my husband.  I couldn’t believe it was a dead stop at NOON on 95 but it’s because of all the road construction that it took me hours to get down there.  I could have been in New York, NY in this time.  Ridiculous.

I was so sleepy.  I thought the medication would have wore off as it should have but it didn’t drowsiness wise meaning I had the hardest time keeping my eyes open.  Of coarse Tim called and I told him this and got to hear about “oh great now you are going to fall asleep at the wheel and kill yourself”  Oh geez… No.  I am stronger than that.  I can make myself snap out of it.  I had to mess with my mind and add some music and fresh air.  I only went to one store that was planned – yay me. Did great there! I got my mail that goes to VA and new plates and tags.  Woohoo! Headed home through Maryland because I was NOT doing that VA nonsense again.

I am just about to pull onto my street and my doctor is calling me.  Oh great.  I was hoping for no call because I thought “No news was good news” so I wasn’t happy to hear from her. She (my oncologist) had gone over Mondays scans with my surgeon and a Radiology Dr. and found there is an air sac in my spleen near my colon.  They found this to be serious and ordered a study to be done in Radiology tomorrow morning.  I have to take enema solutions tonight… gross.

When I got home the pain was starting again and this time I still had the doctor on the phone so I had told her about it and she said this is why this could be very serious.  The pain and fevers especially.  Ugh great!  I’ve learned from my 1/2 year late diagnosis that I can handle pain better than anyone so my spleen better not rupture again because that was the WORST PAIN ever!! I was paralyzed and went blind from my body going into shock from the pain so yes, that insanely bad.  So these spleen pains are a touch of that rupture pain because they are paralyzing feeling, I can’t move and I hold my heart while holding my breathe so I remain cool and calm.  The oxys took 2 hours to kick in.

Time for me to detox/shower/relax.

xoxo ~Ashley

Holy shooting spleen blamed pain

Gosh I can’t write tonight.  I don’t know if it’s because I’ve finally ate my first meal in a while (I haven’t been hungry much lately) or what?  I have the worst crazy pain from my neck/shoulder shooting down my left side.  I have had this lately every now and then and this is consistent with my spleen problems..which is the cause we do know.  It’s insane and paralyzing feeling though.  I am hoping these pain meds kick in fast!

Other than that I accomplished a lot today! I feel great about that!!  No, I didn’t stay in bed and I did do things, but I was gentle on myself… or gentle enough 🙂  No worries.

I need to relax now. 🙂

xoxo ~Ashley

Chemo Monday = No bueno

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Drinking that contrast… yum?

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Crazy med stuff

My oh my yesterday didn’t go as planned nor could I have imagined it going so badly.

I started the day so early and his the snooze on my iPhone alarm again, and again and again.  It was insane just how hard of a time I had getting up.  This is unusual for me.  I am the type that thinks “yup this sucks, Ive had only a couple of hours of sleep and I am so tired but I gotta do what I gotta do.”  I would suck it up, jump in the shower to wake me up with the water and music and head to chemotherapy.

I finally made it to chemo, little late, and Tim of coarse had to rat me out. He told the nurses how I had a fever and how I’ve been feeling bad and all this craziness that didn’t matter because I am there for one reason.  OF COARSE they are going to check my vitals each and every time but no, they checked me on the spot at the nurses station and said I was 101 degrees when I am always 98.-whatever since day 1 of chemo.  They called my oncologist right away and here we go.  This is where all the turns started from a simple chemo day.  I got my room for chemo but my doctor had ordered all these tests to be done for different infections and such as well as my CA-19.  Then I had to report to my Dr.

It was funny actually because Tim brought up the fact that I NEVER get sick and even getting chemo and being around him (someone who gets sick a lot in the winter) I still don’t get sick. They made me get the flu shot a month ago (not recently like someone suggested as to the cause of my fever – NO) and I feel like crap aka sick. He said “It’s a Government conspiracy, I won’t be getting a flu shot”  hahahaha!!!! I loved that.

Now I am seeing my Dr. along with some other doctor from NIH.  My Dr. said that my scan from last Monday revealed my spleen has been spitting blood several times and could have a possible infection and/or ascites that would need to be drained.  This is the cause of my pain on my left side.  My Dr. ordered a CT scan stat (yes another, more specific)  and a PET scan.

Any good news??  Yes! My Dr. is happy that there is no new signs of cancer and my cysts that make me look preggo have gone down and the harsh chemo is STILL working after 13 months with no side effects of neuropathy, cold sores, swelling etc.

“You are so strong, your mind and body is just so strong”  my doctor said.  It was funny because my dr. said it’s hard because generally what they see on paper reflects in the patient on the outside.  They look sick, they are slower, they show these common symptoms and they said with me,  “You are just so different”  haha!  That’s for sure.  It was funny because I told Tim in chemo while waiting for my labs to be taken I said “You know, if God said one of you had to get this cancer and wondered who should get it”  It makes sense it’s me.  I don’t get worked up easy at all.  I handle stress so differently (hell0, 9-1-1 dispatching).  He may be stronger physically with his big ol muscles and super fit bod simply from his line of work but I am much stronger mentally.  I mean, we are waiting in the room for my doctor to give us the news and he is tapping every damn thing his hand touched, moving frequently and making those long deep breath sighs…. omg driving me nuts!!    He gets SO freaked out for any news!!  I know its because he cares so much and can’t imagine being without me in life.  It’s sweet but at the same time I’m like “simmer down boy!”.  🙂

Although my doctor calls me strong and amazing, they also said I need BED REST. haha oh boy.  I need to take it easy, I  was told. The most extensive thing I should be doing is reading a book or eating, other than that it’s watching tv and sleeping.  Crazy right?  Obviously yes, though I love to do a million things and I think I have to accomplish these goals… nothing is as important as my health.  If I am not healthy or alive then nothing will get done so yes… I will learn to chill out and relax.  I am starting today.

I get my CAT scan, can’t get PET.  That was a whole mess, I mean from “We need authorization” and them calling to the cancer department and all this crap to “someone is in your file, I can’t open it up” ….omg the hours simple crap takes.  Anyone could easily said “I went to get chemo, couldn’t, met with my dr. got a scan and left”  ohhhh no!  It was so much more! haha!

Oh the fever!  So an infection can cause cold-like symptoms and definitely a fever. This was very concerning to my dr because a spleen infection with everything else going on is no joke and the scans were done so they could review it with my surgeon to see if I would need surgery, draining or anything else.  No good.

I will find out the results today or tomorrow.  The blood infection test takes 48 hours so probably more like tomorrow.

The nightmare:

After finally leaving my hospital and heading down to Arlington, VA so Tim could do his stuff, we headed home.  Ok so my head is burning but I am SO COLD.  That early evening I decided yes I will stay at home while Tim take the boys for a walk.  Our townhouse in DC has a little yard fenced in and I always see them out.  I did but the neighbors just got a new Pit Bull. The pit bull happen to be out the same time so the guy quickly called him in and he came but as he saw my chocolate lab running out in the yard he ran fast to the fence and they were both barking.  Tim called the dogs up because they were already harnessed but he needed to put the leashes on and as they were coming the very aggressive pit bull just was attacking at the fence and went right over.  The fence is weak so it didn’t take much for an aggressive dog to push and go over it but it attacked my golden retriever, my baby.

Oh my god, did I see red!!  I almost lost it!!!!  Or did I?  Well I am not in jail so I didn’t completely.  I was FLIPPING OUT and the pit bull had attacked and locked jaw onto my golden retriever in my yard. The owner ran and Tim of coarse ran instantly and two big grown muscle men were beating this dog to get him off my golden.  Tims final punch to the top of the pits head was the final punch and knocked the dog down and released the jaw.  Yes I wanted to put so many bullets into that dog.  After meeting with the police and animal control, Toby was rushed to the animal hospital. Poor baby. 😦

These dogs are illegal in many countries for this reason.  Yes there are pit bulls that are nice and it’s a reflection of the dog owner although it’s the breed but this is the reason most people hate pit bulls.  These ones give them a bad one.  I watched so many episodes of Judge Judy of animal attack cases.  It’s different when it happens to your baby.  If this goes to civil court, it is an open/shut case.  Pit bull vs. Golden retriever in OUR yard.  Done. They pay.

What a day it was!!

Well it’s 10:30pm on Tuesday. I got laundry done, dishes put away and paperwork done tonight.  I might as well relax now as the doctor ordered. 🙂

xoxo ~Ashley

Time to get the weekend started… very slowly…

IMG_8569-002^ This is a random pic of us from last summer in Yosemite National Park in good ol California

Oh thank goodness for my dog gate I pulled out from the basement!!! 🙂   I never have needed it but tonight I am in heaven because of it.  I am cooking a new recipe, looking at my computer… ok and now blogging and generally like tonight my husband has just gotten home and wants to talk and my dogs are happy daddy is home, mommy is cooking and they home I drop something and they are all sorts of in the way.  Not tonight!! They are looking sad from the other side of the gate but I’m smiling!! 😉   Our kitchen isn’t big enough for 2 little 4-legged shadows walking right behind me and I am always tripping over them. I open the fridge and they are backing up into each other… ugh, nightmare.  Problem SOLVED!

Since Monday I’ve had a weird week.  I mean the contrast made me gross that day then Tuesday I was tired because of my Oxycodones as with last night.  No I am not ever tired in the day or would I be as long as I get sleep and don’t take my Oxys.  I’ve had a lot of pain this week from my spleen. This is always a concern when I have pain!! I get nervous and since I’ve had spleen issues that hospitalized me if you recall that blog. Ugh! I’ve had major back pain but had realized I had lifted pretty heavy boxes because I forgot I can’t do that stuff anymore.  Ahh!  I really do forget things like that and the pain is always a reminder.  I forget my back isn’t strong as it used to be so I am not sure if it also inflamed my spleen causing the pain or what.  This was even a ‘tender to the touch’ pain. I had up’d my dose of pain med to 20mg.  I know some people are against narcotics but I tried the homeopathic ways first and I hurt bad so I wasn’t going to put up with pain when my Oxy does the trick.  This has caused my drowsiness though with the higher mg. It takes away my pain though! 🙂  Or at least today it finally did.  I woke up in a lot of pain and took my pain meds and it finally worked, I felt good today!! 🙂

I reeeeally need this weekend to go very very slow.  I have a lot of things to get done, places to be, people to see etc.  all done before chemo Monday and I have another busy 2 weeks.

PS anyone notice anything in my March 1st blog?…… you won’t see it if your looking at your e-mail, only the site on inet… haha….

xoxo ~Ashley